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2024-05-03 15:14:39
NICE develop evidence-based recommendations developed by independent committees, including professionals and lay members, in consultation stakeholders. They conducted a rigorous research review for MECFS to inform the development of the 2021 guidelines. [Link]
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2024-05-03 15:19:57
The claim that 'professional' patient advocacy groups steered the NICE ME/CFS guideline process is completely unfounded. Patient (lay) members—acting in a personal capacity—made up only a small fraction of the guideline committee. [Link]
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